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Posted

Mine and my kids CR1/2 are still at USCIS.  My 18 year old son has become ill. At first we thought Bell's Palsy because the side of his face went numb and drooped., Then his speech became slurred and they have tested for hypothyroidism, but no results yet.  In the past 2 days he is becoming paralyzed down his right side and can not walk evenly.  My MIL is a nurse and is screaming to get him to see a neurologist which I will try on Monday, but all the doctors here are dedicated to the Covid #######.  I am scared for my son and he needs good care.  My spouse can add us to his work insurance if we are in the USA.   My MIL swears he may have something called Guillian Barre Syndrome .  Will they help us do you think? 

Posted
2 minutes ago, PIRuby said:

Mine and my kids CR1/2 are still at USCIS.  My 18 year old son has become ill. At first we thought Bell's Palsy because the side of his face went numb and drooped., Then his speech became slurred and they have tested for hypothyroidism, but no results yet.  In the past 2 days he is becoming paralyzed down his right side and can not walk evenly.  My MIL is a nurse and is screaming to get him to see a neurologist which I will try on Monday, but all the doctors here are dedicated to the Covid #######.  I am scared for my son and he needs good care.  My spouse can add us to his work insurance if we are in the USA.   My MIL swears he may have something called Guillian Barre Syndrome .  Will they help us do you think? 

Sorry to hear about your son.

 

In general, expedites are approved only for urgent needs of the petitioner.

 

Even if you did get an expedite, it would be months before you could bring him here, and he cannot wait that long to be evaluated.

Posted
6 minutes ago, Jorgedig said:

Sorry to hear about your son.

 

In general, expedites are approved only for urgent needs of the petitioner.

 

Even if you did get an expedite, it would be months before you could bring him here, and he cannot wait that long to be evaluated.

Yes I know and my MIL is a Bull Dog and she will be calling his doctor and demanding a neurologist immediately, but you know the care here is not the same.  I am scared 

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Posted
27 minutes ago, PIRuby said:

Yes I know and my MIL is a Bull Dog and she will be calling his doctor and demanding a neurologist immediately, but you know the care here is not the same.  I am scared 

You would need a letter from doctor stating he can;t get the care there that he needs to come to US. Your husband needs to state what hardship this is on him. It's about the hardship on the petitioner not the beneficiary.

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Posted

 Guillian Barre Syndrome starts in the lower limbs and you say started in the face '

It is also very rare 

 

https://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/symptoms-causes/syc-20362793

 

Symptoms start as weakness and tingling in the feet and legs that spread to the upper body. Paralysis can occur.

 

he needs a neurolgist ASAP

there are so many things this could be including a stroke 

Posted (edited)
6 minutes ago, JeanneAdil said:

 Guillian Barre Syndrome starts in the lower limbs and you say started in the face '

It is also very rare 

 

https://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/symptoms-causes/syc-20362793

 

Symptoms start as weakness and tingling in the feet and legs that spread to the upper body. Paralysis can occur.

 

he needs a neurolgist ASAP

there are so many things this could be including a stroke 

I asked my MIL and she said yes it USUALLY starts at feet but it can go the other way.  Whatever it it is it is scary. Stroke was already ruled out.  " Occasionally symptoms start in the upper body and move down to the legs and feet. "

Edited by PIRuby
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Posted
3 minutes ago, PIRuby said:

I asked my MIL and she said yes it USUALLY starts at feet but it can go the other way.  Whatever it it is it is scary. Stroke was already ruled out. 

Only reason i know about this at all is Mayo Clinic in Jacksonville Florida tested my son for this 

(BTW he still is with no dianogsis for his issues)

but his nervous system is deteriorating as the mylein sheath is deteriorating and affecting joints and muscles and ligaments and tendons

He has has 37 surgeries with 7 on his spine and is  loosing eyesight and hearing 

I sincerely hope he does not go thru what we have been thru 

 

U may try getting a physician to get appointment at the Mayo for dianogsis as they see foreign patients and sounds like your son needs help fast

At this point it could be faster to get a temp visa for medical than the CR1 

 

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Posted
6 minutes ago, JeanneAdil said:

Only reason i know about this at all is Mayo Clinic in Jacksonville Florida tested my son for this 

(BTW he still is with no dianogsis for his issues)

but his nervous system is deteriorating as the mylein sheath is deteriorating and affecting joints and muscles and ligaments and tendons

He has has 37 surgeries with 7 on his spine and is  loosing eyesight and hearing 

I sincerely hope he does not go thru what we have been thru 

 

U may try getting a physician to get appointment at the Mayo for dianogsis as they see foreign patients and sounds like your son needs help fast

At this point it could be faster to get a temp visa for medical than the CR1 

 

@JeanneAdil I am so sorry. My goodness. Prayers for your son and you all.🙌

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Posted
9 minutes ago, dwheels76 said:

@JeanneAdil I am so sorry. My goodness. Prayers for your son and you all.🙌

9 minutes ago, dwheels76 said:

@JeanneAdil I am so sorry. My goodness. Prayers for your son and you all.🙌

Appreciate the prayers 

we ,  like this woman ,   want to know what happened and what can be done

and i sincerely hope not this illness for her son as there is no cure

perhaps a VJ member here knows of a fast way to get her to Mayo for the issue especially since she lists Jacksonville as city in US 

They were good to us and have helped with all our surgeries 

 

knowing why is a big part of "the needed help"

the illness she talks about is often an acute  bacterial or viral infection and my son had been a commercial diver in the Gulf,  atlantic and inland rivers, so they thought he had picked up a rare one

I can't remember all the things they tested him for but Mayo has several facilities that can do EVERY test known to medicine and i hope this helps the OP 

 

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Posted

Just remembered that they tested him twice for Whipple's 

 

as it is also bactertial but usually starts in organs and the intestinal area especially but the following can also happen:

 

  • Neurological symptoms such as eye and facial muscle abnormalities, confusion, seizures, ataxia, memory loss, and vision impairment.
  • Fatigue.
  • Weakness.
Posted
36 minutes ago, JeanneAdil said:

Only reason i know about this at all is Mayo Clinic in Jacksonville Florida tested my son for this 

(BTW he still is with no dianogsis for his issues)

but his nervous system is deteriorating as the mylein sheath is deteriorating and affecting joints and muscles and ligaments and tendons

He has has 37 surgeries with 7 on his spine and is  loosing eyesight and hearing 

I sincerely hope he does not go thru what we have been thru 

 

U may try getting a physician to get appointment at the Mayo for dianogsis as they see foreign patients and sounds like your son needs help fast

At this point it could be faster to get a temp visa for medical than the CR1 

 

OMG, what do the neurologists say.  I am sorry to hear about this and of course it makes me even more scared for my son.

Filed: Citizen (apr) Country: Morocco
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Posted
8 minutes ago, PIRuby said:

OMG, what do the neurologists say.  I am sorry to hear about this and of course it makes me even more scared for my son.

his mylein sheath around the dentrites are deteriorating and the nuclei seem to be getting destroyed and the tracts (or pathways) are "just plain dying" 

but we pray your son does not have long term issues

 

you need to get him ASAP to a dr to know for sure to start treatments ASAP 

and i do not mean to be an alarmness on this issue / we all pray for his recovery 

 

when my son had his first surgery we thought just a slipped disk so he had 1st surgery and  went back to college to work in the office but the deterioration continued 

 

you need neurologist and MRI and Cat scan to see what is happening to his body

wishing you the best 

don't wait for the CR1 visa to get that help

 

Posted
28 minutes ago, JeanneAdil said:

his mylein sheath around the dentrites are deteriorating and the nuclei seem to be getting destroyed and the tracts (or pathways) are "just plain dying" 

but we pray your son does not have long term issues

 

you need to get him ASAP to a dr to know for sure to start treatments ASAP 

and i do not mean to be an alarmness on this issue / we all pray for his recovery 

 

when my son had his first surgery we thought just a slipped disk so he had 1st surgery and  went back to college to work in the office but the deterioration continued 

 

you need neurologist and MRI and Cat scan to see what is happening to his body

wishing you the best 

don't wait for the CR1 visa to get that help

 

As soon as Monday comes we are calling his doctor to demand he be seen by neurology.

Posted

Please push to get an MRI ASAP to find out best treatment...

 

As reassurance, please know my husband has Bell’s palsy his last episode was very close to how you described; it started in the face before moving down one side of his body, Yes very scary but he Did recover fully after a month or two.. know your son is young and strong and will hopefully fully recover to if it is Bell’s palsy.. thoughts are with you 🤗

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Posted
8 minutes ago, Duke & Marie said:

Please push to get an MRI ASAP to find out best treatment...

 

As reassurance, please know my husband has Bell’s palsy his last episode was very close to how you described; it started in the face before moving down one side of his body, Yes very scary but he Did recover fully after a month or two.. know your son is young and strong and will hopefully fully recover to if it is Bell’s palsy.. thoughts are with you 🤗

I did not realize that Bells Palsy could move down the body?  Oh I found this, It does not need to be the petitioner who is sick.  " In special situations, the expedite request can be accepted if there are urgent humanitarian reasons behind. To give an example, you may have a family member in need of treatment, or you may need some critical medical treatment with time-sensitive action. These are only a few examples, and there could be way more based on what USCIS considers a valid humanitarian reason."

 
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