I really appreciate everyone's input and information, this forum has been invaluable to us.
I ended up reaching out to my congressman. There was a simple privacy release form to fill out and email to their office so it was fairly simple.
Will any sort of inquiry from my congressman help us receive a response? Maybe not. But at least I feel like we're doing everything we can and putting our best foot forward. Maybe it will help bring a small additional measure of awareness to the wait times we have all suffered and endured. Maybe it will just give us peace of mind knowing that we are trying everything we can.
Coming up on 16 months waiting for a response is hard. To anyone else in a similar situation, or others in much worse situations, I guess all I can say is that reaching out to my congressman at least made us feel better. If nothing else, I suppose that in of itself is worth it.